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You probably wonder what am I up to now. Well,
"elephant in the room" an English idiom for an
obvious truth that is being ignored or goes unaddressed, is based on the idea that an elephant in a small room would be impossible to overlook.
The idiom also implies a value judgment that the issue ought to be discussed openly. "Elephant in the room" is commonly used in addiction recovery terminology to describe the reluctance of friends and family of an addicted person to discuss the person's problem, thus aiding the person's denial.
The "Elephant in my room" relays to the problem of non-communication about Multiple Sclerosis. I find it difficult to talk about with my family plus the issue of "if I don't talk about it, I don't have it" philosophy, no one understands the problems I deal with or the hard time functioning.
I operate as though I have no medical challenges. Because of this I am often over-tired, in great pain and really uncomfortable. A lot of effort is required to "be normal". Additionally, over-doing leads to making mistakes, cranky behavior, trouble concentrating, withdrawal and great unhappiness. Joy is not part of the equation.
Family and friends kept in the dark, unable to see "the elephant in the room", have no idea what the truth is. They only know what they experience and see. They only sense something is wrong and their mind fills in the details, which are usually wrong, leading to trouble in relationships.
My husband and I never talk about multiple sclerosis because we have an unspoken agreement that if we don't talk about it, don't acknowledge "the elephant in the room", we can continue living as though all is ok.
After a trip to my neurologist a few days ago he ambushed me with a new assistant named TJ. She asked me what problems I had and where did I hurt or feel uncomfortable. Tears gushed from my eyes because no one ever asked me that before especially with such feeling and caring...and I have had multiple sclerosis since 1984 and fibromyalgia for quite a few years! I realized I NEEDED HELP!
Asking for help is not easy...to me it means weakness, complaining, asking for attention and other undesirable things.
Because I can't do all the things I would like to do for others, I beat myself up as a bad person.
I decided the first person who needs to see "the elephant in the room" is ME! If I don't acknowledge it no one else can.
I have to be like the little boy in the "Emperor's New Clothes". (The emperor marched down the street with no clothes on and his subjects praised his beautiful clothes without commenting on his nudeness because either they didn't notice or they didn't want to be the one to tell or acknowledge his nakedness. Finally a little boy loudly proclaimed that the emperor had no clothes on).
My friends and family don't want to "see" my disability because they don't want it to be true either. My mother avoided me after I was first diagnosed in 1984. I never saw her again and she died in 2007. They don't know what to do about it either. Since they don't know what to do about it, they tend to ignore it.
Friends and family also need education about multiple sclerosis, fibromyalgia so they understand what problems these disabilities may present. My responsibility means I must tell them what is happening to me and what help I may need from them. No one else can do this except me.
My first step involves joining a local multiple sclerosis society group. Wow...an incredible amount of support and help there. I had no idea until I acknowledged "the elephant in the room".
Bringing my husband to a society sponsored event next Tuesday will help him understand better. But, most importantly, I must, not only acknowledge that "elephant in the room", I must point it out to family and friends by reaching our for their support and help.
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